As the Associate Director of Patient Advocacy, you will play a pivotal role in ensuring that the patient voice is heard and integrated into all aspects of Lexeo’s activities. You will be responsible for developing and implementing strategies to engage with patient advocacy groups and patient communities to understand patient perspectives and address unmet needs. By collaborating closely with cross-functional teams, you will help drive initiatives that prioritize patient-centricity and improve patient outcomes.
Primary Responsibilities

• Develop and execute a patient advocacy strategy aligned with the company's overall objectives and values
• Build and maintain relationships with Global patient advocacy groups to foster collaboration and partnership
• Lead patient advisory boards and focus groups to better understand patient diagnostic journey, patient preferences, and educational gaps.
• Communicate insights from patient and advocacy group interactions with cross-functional team members to inform program strategies and clinical development plans
• Provide guidance and support to internal teams on best practices for engaging with patients
• Serve as a liaison between the company and patient communities, ensuring that their perspectives are considered in decision-making processes
• Lead the development and implementation of patient-centric initiatives, programs, and resources, such as educational materials and advocacy campaigns
• Represent the company at patient-focused conferences, events, and meetings
• Collaborate with cross-functional teams, including Medical Affairs, Marketing, Market Access, Regulatory Affairs, and Clinical Development, to ensure alignment and integration of patient advocacy efforts across the organization
• Track and measure the impact of patient advocacy initiatives and provide regular updates and reports to senior management

Required Skills & Qualifications

• Minimum 3 years of relevant professional experience
• Undergraduate degree required
• Master's Degree in related field (genetics, public health, etc.) preferred
• Strong track record of developing and supporting successful patient advocacy strategies and communications with excellent written and oral communication skills
• Experience in gene therapy, cardiology, and/or rare diseases preferred