What are the responsibilities and job description for the Client Services Social Work position at Turner Syndrome Foundation?
Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome
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Volunteer Client Services Representative (Part-Time, On-Site | Hazlet, NJ)
Organization Turner Syndrome Foundation
Location Hazlet, New Jersey (On-site only)
Schedule Ongoing / Permanent, Part-Time Volunteer
Category Health Services, Social Work, Counseling, Nonprofit Support, Client Services
Make a Direct Impact in Patient Support and Advocacy
Turner syndrome affects 1 in every 2,000 females and is the second most common genetic condition in women. Individuals diagnosed with Turner syndrome require lifelong, specialized care and access to trusted resources.
The Turner Syndrome Foundation is seeking dedicated volunteers to join our Client Services Team, supporting patients and caregivers through personalized communication, resource navigation, and compassionate guidance.
This role is ideal for individuals pursuing or experienced in social work, counseling, psychology, healthcare, or nonprofit services who want meaningful, hands-on experience in client support.
Position Summary
As a Client Services Representative, you will provide direct support to individuals and families navigating Turner syndrome. You will communicate with clients, manage cases, and connect them to relevant medical, educational, and community resources.
This is an on-site volunteer opportunity in Hazlet, NJ. Client interactions are conducted virtually (phone, email, web), but volunteers work from the office.
Core Responsibilities
Your support helps individuals and families
Important Details
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome
,
Volunteer Client Services Representative (Part-Time, On-Site | Hazlet, NJ)
Organization Turner Syndrome Foundation
Location Hazlet, New Jersey (On-site only)
Schedule Ongoing / Permanent, Part-Time Volunteer
Category Health Services, Social Work, Counseling, Nonprofit Support, Client Services
Make a Direct Impact in Patient Support and Advocacy
Turner syndrome affects 1 in every 2,000 females and is the second most common genetic condition in women. Individuals diagnosed with Turner syndrome require lifelong, specialized care and access to trusted resources.
The Turner Syndrome Foundation is seeking dedicated volunteers to join our Client Services Team, supporting patients and caregivers through personalized communication, resource navigation, and compassionate guidance.
This role is ideal for individuals pursuing or experienced in social work, counseling, psychology, healthcare, or nonprofit services who want meaningful, hands-on experience in client support.
Position Summary
As a Client Services Representative, you will provide direct support to individuals and families navigating Turner syndrome. You will communicate with clients, manage cases, and connect them to relevant medical, educational, and community resources.
This is an on-site volunteer opportunity in Hazlet, NJ. Client interactions are conducted virtually (phone, email, web), but volunteers work from the office.
Core Responsibilities
- Provide client support via phone, email, and written correspondence
- Manage client cases, including documentation and follow-up
- Maintain detailed case notes and records
- Research and share resources related to Turner syndrome care and support
- Listen actively and respond with empathy and professionalism
- Assist clients in navigating healthcare, education, and support systems
- Collaborate with staff to ensure high-quality service delivery
- Track tasks, schedule follow-ups, and ensure continuity of care
- Background or interest in social work, counseling, psychology, healthcare, or human services
- Experience in client support, case management, or nonprofit services (preferred but not required)
- Strong interest in patient advocacy and health education
- Excellent verbal and written communication
- Empathy and active listening
- Organization and attention to detail
- Problem-solving and critical thinking
- Professionalism and reliability
- Positive and compassionate approach to service
Your support helps individuals and families
- Access critical health and support resources
- Build confidence in self-advocacy
- Navigate complex medical and life transitions
- Improve long-term health outcomes
Important Details
- Location Hazlet, NJ (on-site required)
- Work Type Volunteer (Permanent / Ongoing, Part-Time)
- Environment Office-based, client-facing (virtually)
- Training & Supervision Provided
- https //turnersyndromefoundation.org/talent-application/