What are the responsibilities and job description for the Executive Director, Evidence Generation and Scientific Communications position at Neurogene Inc?
Company Background
The mission of Neurogene is to treat devastating neurological diseases to improve the lives of patients and families impacted by these rare diseases. Neurogene is developing novel approaches and treatments to address the limitations of conventional gene therapy in central nervous system disorders. This includes selecting a delivery approach to maximize distribution to target tissues and designing products to maximize potency and purity for an optimized efficacy and safety profile.
The Company’s novel and proprietary EXACT transgene regulation platform technology allows for the delivery of therapeutic levels while limiting transgene toxicity associated with conventional gene therapy. Neurogene has constructed a state-of-the-art gene therapy manufacturing facility in Houston, Texas. CGMP production of NGN-401 was conducted in this facility and will support pivotal clinical development activities. This transformative work is driven by our highly collaborative people who come together each day to bring us closer to achieving our mission.
As an employee of Neurogene, you will be part of building a culture that honors patient and caregiver mindsets and nurtures innovation, creative problem solving and a strong sense of purpose.
Position Overview
- Work Location: Remote with ~25–30% travel
- Reports To (Position): VP, Medical Affairs
Neurogene is seeking a highly collaborative Executive Director, Evidence Generation and Scientific Communications to lead the generation and execution of the comprehensive evidence that will support NGN-401 and our broader pipeline. This is a critical and highly visible role at a pivotal time for the company. This leader will identify the evidence gaps that matter most to clinicians, multidisciplinary care teams, patients, caregivers, and payers, and turn them into a clear, prioritized plan. Working closely with Clinical Development, Biostatistics, Regulatory, HEOR/Market Access, Medical Affairs and leading external experts, this individual will drive that plan from concept through execution. Beyond evidence generation, this leader will oversee execution of our publication and congress plan, and manuscripts, and will serve as a scientific subject matter expert in the Medical, Legal, and Regulatory (MLR) review process, and support broader scientific communication priorities across Medical Affairs.
This role offers the opportunity to shape how the data for a potentially transformative gene therapy are generated, interpreted, and shared with the scientific community. We are looking for someone who brings scientific rigor, sound judgment, and the ability to influence across functions.
Experience in rare disease, pediatric neurology, genetic medicine, and/or gene therapy is highly valued. We are equally interested in exceptional candidates who have led evidence generation and publication programs in complex specialty or rare disease settings.
In rare disease, every data point matters. The quality of the evidence we generate, and how clearly and credibly we communicate it, will directly shape our ability to serve patients and families.