What are the responsibilities and job description for the Senior Web Developer (WordPress) position at National Organization for Rare Disorders?
About NORD
The National Organization for Rare Disorders (NORD) is the leading independent nonprofit organization representing all patients and families affected by rare diseases. Come join our team and be part of the transformation and acceleration of research, and the development of evidence-based policy, care support and awareness campaigns to improve the lives of the 30 million Americans impacted by rare diseases. We offer a competitive compensation and benefits package along with a collaborative work atmosphere, opportunities for career growth and development and flexible telecommuting options. Learn more at www.rarediseases.org.
Position Summary
The Senior Web Developer (WordPress) is a strategic and hands-on technical leader responsible for the performance, scalability, governance, and continuous evolution of NORD’s web and digital application ecosystem, serving more than one million annual users.
This role owns a complex portfolio of digital properties including NORD’s primary website, IAMRARE registry microsites, Membership Portal, and emerging platforms such as NORDCentral. The position combines web engineering, systems integration, product ownership, and cross-functional leadership to deliver secure, accessible, and high-impact digital experiences aligned with NORD’s mission.
The Senior Web Developer collaborates closely with Marketing, Programs, Development, IT, and external partners.
Essential Duties And Responsibilities
Telecommuting position based in the U.S.
Essential functions are typically performed in a home office setting with a low level of noise.
Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.
NORD is an equal opportunity employer. All applicants will be considered for employment without attention to race, color, religion, sex, sexual orientation, gender identity, national origin, veteran, or disability status.
The National Organization for Rare Disorders (NORD) is the leading independent nonprofit organization representing all patients and families affected by rare diseases. Come join our team and be part of the transformation and acceleration of research, and the development of evidence-based policy, care support and awareness campaigns to improve the lives of the 30 million Americans impacted by rare diseases. We offer a competitive compensation and benefits package along with a collaborative work atmosphere, opportunities for career growth and development and flexible telecommuting options. Learn more at www.rarediseases.org.
Position Summary
The Senior Web Developer (WordPress) is a strategic and hands-on technical leader responsible for the performance, scalability, governance, and continuous evolution of NORD’s web and digital application ecosystem, serving more than one million annual users.
This role owns a complex portfolio of digital properties including NORD’s primary website, IAMRARE registry microsites, Membership Portal, and emerging platforms such as NORDCentral. The position combines web engineering, systems integration, product ownership, and cross-functional leadership to deliver secure, accessible, and high-impact digital experiences aligned with NORD’s mission.
The Senior Web Developer collaborates closely with Marketing, Programs, Development, IT, and external partners.
Essential Duties And Responsibilities
- Own and manage NORD’s web ecosystem, including WordPress platforms and multisite architecture supporting 20 IAMRARE registry microsites, ensuring reliability, scalability, security, accessibility, and performance.
- Lead development and maintenance of websites, including custom themes, plugins, multilingual workflows, and governance standards.
- Oversee key digital platforms and integrations, including the Membership Portal (WordPress, Salesforce, Stripe) and NORDCentral, ensuring seamless system interoperability.
- Design and maintain end-to-end integration architecture across CRM, payment, and content systems; develop custom applications and internal tools as needed.
- Evaluate and implement emerging technologies, including AI and automation, to improve operational efficiency and digital capabilities.
- Lead web initiatives such as microsites, campaign pages, and enterprise CRM integrations, ensuring data integrity, workflow automation, and cross-platform alignment.
- Collaborate with Marketing, Programs, Development, and external partners to deliver high-quality, compliant digital experiences.
- Manage project timelines, priorities, and resources across multiple initiatives using Agile or hybrid methodologies.
- Monitor and optimize website performance, SEO/SEM, UX, accessibility, and conversion rates; develop reporting and dashboards to inform decision-making.
- Own CRM and platform integrations (e.g. Salesforce, Stripe), ensuring data integrity, supporting member lifecycle processes, and resolving issues impacting revenue and user experience.
- Design and maintain APIs, data pipelines, and ETL processes to support system interoperability and data management.
- Supervise and mentor web team members; provide training, manage workflows, and enforce governance for internal contributors.
- Ensure compliance with accessibility (WCAG), privacy, and security standards; maintain documentation of systems, processes, and architecture.
- Perform other duties as assigned.
- Bachelor’s degree in Computer Science, Marketing, Communications, Business, or equivalent experience.
- 7 years of experience in web application development in business-critical environments (preferably nonprofit, healthcare, or regulated industries).
- 5–7 years of WordPress experience, including multisite architecture and complex integrations.
- Demonstrated experience leading projects and/or supervising staff.
- Advanced knowledge of LAMP stack, HTML5, CSS, PHP, and MySQL.
- Deep expertise in WordPress architecture, including multisite and plugin development.
- Strong experience with REST APIs and integration architecture.
- Proficiency in JavaScript and modern front-end frameworks (preferred).
- Experience with Salesforce, Stripe, and CRM/marketing automation ecosystems.
- Familiarity with analytics platforms (Google Analytics, Search Console, etc.).
- Experience with version control (Git) and CI/CD workflows.
- Knowledge of data migration, ETL processes, and system interoperability.
- Understanding of UX/UI principles and accessibility standards.
- Exposure to AI/ML tools and automation platforms (preferred).
- Familiarity with healthcare or regulated data environments (preferred).
- Strong project management skills (Agile preferred).
- Excellent communication, organizational, and leadership skills.
- Self-motivated, detail-oriented, and mission-driven.
Telecommuting position based in the U.S.
Essential functions are typically performed in a home office setting with a low level of noise.
Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.
NORD is an equal opportunity employer. All applicants will be considered for employment without attention to race, color, religion, sex, sexual orientation, gender identity, national origin, veteran, or disability status.